Promoting health equity in clinical trials

Recently, Oncology Research Coordinator, Banita Aggarwal, attended the 32^nd Annual Society of Clinical Research Associates conference in Montreal. One of the conference highlights was a presentation by Annie Ellis, a cancer survivor and dedicated research advocate, who shared valuable insights about participation in clinical trials, the importance of access, and ways to support diverse communities.

Dispelling myths

Annie addressed prevalent myths surrounding clinical trials, emphasizing that there is a common myth that clinical trials are a last resort, and that participants are “lab rats”. She stressed the need to dispel misconceptions through peer support conversations and educational resources, noting that it takes an average of three interactions to shift perceptions from “never ever” to “will consider” participating in clinical trials.

Patient barriers to accessing clinical trials:

• Lack of education
• Fear of the unknown
• Financial hardships such as travel, accommodation, food, childcare, time off work, etc.
• Language barriers

Clinical barriers:

• Eligibility criteria means that trials are not always representative or inclusive
• Options to participate: Every patient should be offered the option to consider a clinical trial at every decision point, if available

Annie Ellis' presentation underscores the need for collective efforts to promote health equity in clinical trials. We can do this by helping to dispel myths, addressing barriers, broadening eligibility criteria and using inclusive language. Clinical trials should be accessible to all, helping to provide hope and potentially life-saving opportunities for the diverse communities we serve.